The generic brand Salpraz pisses me off hugely - they have the most wasteful packaging you can imagine. I get the better-packaged (and better working) brand Somac instead now. This Salpraz box is for just 30 tablets, and is a good 6 cm (over 2") high, with only 6 tablets per foil sheet.
See those huge foil blisters? And the size of the tablet that comes out of them? It's redonkulous. It's hard to actually find the blasted tablet within the blister ... the packaging is about 5 times too big.
When you're on prednisolone, especially at insanely high levels, you need a medical alert bracelet. Because I won't be on it long term (hopefully), I didn't want to pay for an expensive metal bracelet. So I ordered one of these blank rubber wrist bands from the Aussie company Mediband, and wrote my condition inside. They do a good range - I got a Type 1 Diabetes one for Dotter as well (although she also has a metal medic alert necklace). This is the one I got.
This week I've seen my physiotherapist, immunologist and neurologist and GP. The three auto-immune contestants are still Sjögren's Syndrome (which my grandmother had), CNS Vasculitis (or possibly Sjögren's + Vasculitis) or Sarcoidosis. I need a bunch more rather unpleasant tests to narrow things down, a cerebral angiogram being the most frightening. I'm trying not to think about it too much ... there's a long way to go yet, with a fair bit of outpatient hospital time ahead.
I think there's a little improvement in my visual field, but I won't know for sure until next week when I have a new peripheral vision test. I'm still not allowed to drive. My right arm is still numb, and the numbness now extends into the right side of my jaw and mouth. The reflexes in my right leg are "hard to elicit". I'm having a nerve conduction study done soon.
The prednisolone is pretty horrible. I don't recommend it. I've got a lot of side effects, from the minor (bitter taste in my mouth all the time, severe heartburn, insomnia) to the serious (steroid-induced diabetes). My doctors are keen to get me off it soon, I'll start tapering off at the end of October, and be off it by the end of November. I'm not responding as well as they were hoping.
I'm likely to need to be on some hefty immune-suppressant meds long-term, including one used for organ transplant patients to stop rejection, and low doses of a chemotherapy agent (with all the associated hair loss, nausea and the rest). Both of them are carcinogenic.
Whatever I have, it's definitely auto-immune, and there's no cure, so the rest of my life will be all about managing symptoms, flare ups and remissions.
Just taking it a day at a time at the moment, and taking advantage of this prednisolone-induced manic cleaning obsession while it lasts ... also doing a fair bit of blatant retail therapy, I must admit :/